Treatment
Treatments, which were offered us in Poland was based on extending leg in a few years and inserting prosthesis. Other doctors recommended to wait. In Poland the foot elongation is possible at the age of 7 to 10
Julia has already had one surgery – toes straightening. However, the result of the operation was not satisfying. The toes do not touch the ground, are set up, and still turn aside. Foot reconstruction is not even considered to be done in the nearest future. Julia has a tiny bone in her foot, on which the whole body weight is based on. Julia weights 20 kilograms at the moment. Over the time the bone and hip-joint may not withstand increasing weight.
The only doctor who gave us hope is famous orthopedic surgeon from Florida, USA - Dr Dror Paley who analyzed x-rays photos and diagnosed this rare defect and decided to begin treatment immediately, which would include elongation of tibia bone and foot, ankle and knee joint reconstruction. Detailed report of surgery we will get from Dr Paley after further consultation in November 2013 in Florida.
Dr Dror Paley has international reputation and experience in pediatric orthopedy. Over the past 25 years he has done more then 12 000 limb reconstruction to correct the deformity. He created some of the most advanced surgical techniques used to extend and correct the deformity. He specializes in the treatment of rare diseases, including Fibilar Hemimelia
